Update on Xander

I have avoided posting about Xander's health because it is just a part of our lives and I want people to see all of the fun we are having this summer. But the scary truth is that he is having seizures again. I thought he may have had a few in May but they seemed to go away. Since Saturday he has had 14 and that's just as of 8 this morning. We have had some blood work done and he is scheduled for an EKG and an EEG next Tuesday. Both are painless tests that will give us an idea we hope about what is going on in his little head. When he went in on Monday they found a heart murmur and that will be looked at then as well. His blood work did come back normal. It could take a couple months to get him into the children's hospital in Portland so we may have to start anti-seizure medication before then. Until then we are just going on our normal way and enjoying the sun while it lasts. The big kids get to go spend the weekend with thier Aunt Shelly and that's all they are talking about. Then the next weekend we are off to spend some time with Grandma Cathy at the coast. That will be a lot of firsts for our kids. I can't wait and plan on taking tons of pictures. I will be sure to keep everyone posted if anything changes and feel free to call my cell phone if you want to chat. But you will have to forgive me if I sound a little spacey, my mind has been racing non stop for days.


UPDATE: Xander is starting medicine today (Thursday August 7th). It will make him sleepy so he won't act normal for a while but they think it might stop the seizures within a week. We are waiting for the hospital in Portland to call us to schedule an appointment and an MRI. That could take a few weeks to hear from them. In the mean time we are still taking him for tests on Tuesday.