Xander Update

We have a new pediatrician at the LaGrande Pediatric Clinic who is working with the GI doctor in Boise in treating Xander. He feels this is still Sandifer's syndrome. A week ago we started prevacid solutabs once daily. Then yesterday Xander's symptoms/episodes got worse and he was vomiting every time he would have an attack. Then he'd scream bloody murder for a few minutes until I could calm him. By the evening I had figured out that his new medicine was making him constipated...but to cause that type of a reaction. So I was back on the phone for the 4th time in the past day with his doctor and asked, could he have a reaction similar to Sandifer's if he was constipated? He agreed to put him on a prescription laxative twice daily and told me to switch the time of day he gets his prevacid.Yesterday when I went to pick up some other meds for him I grabbed some children's fiber mix and have been giving that to him until tonight when he started Mirilax (sp?) which is supposed to do the same thing. So far so good, he hasn't had an episode since yesterday late afternoon. If this works then they will wean him off the prevacid to see if he is still having silent reflux and then he will stay on the laxitive for at least a few years before they will try to take him off of it slowly and see if his reaction has gone away. By then he may be able to describe what he feels. Also next week he has another meeting with a speech pathologist to discuss his lack of communication skills.

On a positive note Eva stood all by herself today and when I asked her where her toes were she grabbed them and then tried to tickle her own feet. Then she bit me....!